Saturday, September 6, 2008

The Boy Who Ate Phoenix

Aren't there '50s horror movies about creatures that eat entire cities? This boy could star in his own food fest (and floss with the film roll when he's done).

The steroid that Ori has to take (Dexamethasone) helps the progress of the chemotherapy, but it also ravenously increases his appetite. And increases his body size. Shirts aren't pulling all the way down over his now-rounded stomach and picking him up is becoming an exercise in exercise.

Along with that increased appetite is a decrease in patience. We were warned of a spike in moodiness and after a week of relatively unnoticeable change, it finally surfaced.

But the good news is, he's only on the steroid for this first month of treatment (which we're already more than half-way through).

Here are some pics...

This was taken a couple days after coming home from the hospital.
You can see the pallor that required a blood transfusion a couple days later at his first treatment appointment.


Baby Chris Farley, fresh from a bath this week.
Rounded cheeks and additional chin(s).


Some outdoor shots taken this morning.


A bubble floating overhead.


Those cheeks grow bigger by the second!

3 comments:

Jessica said...

So glad to be following Ori's progress, and so glad that he's responding so incredibly well to treatments. We could help with the steroid-induced food situation by shipping you Sophie's leftovers. Today for "lunch" she ate a piece of wheat bread and a few bits of pita bread - washed 'em down with some strawberry lemonade. I found myself explaining the concept of a "balanced meal" to a 2-year-old. You can imagine how well that went. So if you get a package filled with a toddler-sized portion of a PB&J sandwich, hummus, baby carrots and Tillamook cheddar, you'll know from whence it came.

We've gotten additional folks from our church on the Ori prayer wagon - hope you feel the love coming your way from o'er yonder in the Northwest!

Anonymous said...

With Josh it was Jo Jo's with ranch dressing and with my friend's little grandson (also in treatment for ALL) it's noodles. Such tiny people with such big appetites! We called them roid-rages and remember the times of standing at the refrigerator door growling like a hungry wolf. Hang in there!
Mary M

April WW said...

Loving the good news! Chris Farley baby, huh? Look out, soon he'll be living in a van down by the river! ;)