Tuesday, January 29, 2013
Back to Normal
Ori has been feeling so well for the past week. It has been great! He has been playing with Andon, riding his bike and spending lots of time outside. We have all been enjoying feeling normal again!
We had a short appointment at the clinic last week which was nice. Ori's numbers are still very low. We are scheduled to have our first of many hospital stays this week, but we'll see. He has to be at 750 to be admitted and he was only at 108 last week.
We wouldn't mind at all if the hospital stay was delayed. Ori is a bit sad about going because Andon won't be able to come and be there with him. It will definitely be a different experience for all of us until the restrictions are over at the hospital. Hopefully that will only be for a few more months.
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So glad to hear Ori is feeling better after the steroids. We just took our last dose last night and will be anxiously awaiting when we get our normal boy back. Good job getting through it. As you know, one more step to being done. Sorry to hear you have to go back to the hospital. I'm sure in some ways Tyler wishes he could be there to "shop" at Ori's store.
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